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Lili Reinhart has opened up about finally receiving an endometriosis diagnosis after years of unexplained pain and repeated medical dismissal. The 29-year-old actress shared her story on Instagram, posting photos from a hospital bed following laparoscopic surgery and explaining how the journey to answers was far longer than it should have been.
Reinhart revealed that the diagnosis came only last week, despite countless appointments that left her without clarity. "Last year, I saw a urogynecologist and was diagnosed with interstitial cystitis. I was told there was no cure — and no lasting relief — for my symptoms," she wrote. She recalled "three hospital visits" and meetings with "multiple urologists and gynecologists," adding that "not one of them seriously considered endometriosis as the underlying cause of what I was experiencing."
It wasn't until working with pelvic floor therapists that the condition was even mentioned. Reinhart pushed for an MRI herself, which led to a diagnosis of adenomyosis, a form of endometriosis that affects the uterus. She then sought out a specialist who guided her toward laparoscopic surgery, even as "another gynecologist told me I 'probably didn't have endo' and should just go on the pill."
The actress said she felt overwhelming validation after surgery confirmed the diagnosis. "The second I saw my doctor I asked, 'Did you find it?' And he said, 'We found endo.' And I felt so validated and relieved that I chose to listen to my body and pursue this surgery." She added, "I'm glad I trusted my body and listened to my gut and will continue advocating for others to do so."
Reinhart also highlighted how misunderstood the condition remains, noting that endometriosis "often" carries "a 4-11 year gap between symptoms and a definitive surgical diagnosis" and affects "1 in 10 people with uteruses" according to global health estimates. She shared a photo holding a paper that read, "Believing women's pain shouldn't be REVOLUTIONARY," tagging the Endometriosis Foundation of America.
Reinhart now joins a growing list of public figures speaking openly about endometriosis, including Lena Dunham, Halsey, Julianne Hough, Amy Schumer, Padma Lakshmi and others.
